Hi, my name if Dona and this is my story.
I was diagnosed with ovarian cancer in May, 2015. There was only one sign that anything might be wrong. I was doing Pilates in January, 2015 and any exercise on my stomach, made me feel like there was a ball of jelly floating around. I pressed on my stomach and I could feel something, but no pain or anything else to make me believe something was wrong.
In May, 2015, I could not walk the beach in Florida due to severe pelvic and back pain. That is when I called the doctor for an appointment. I saw my primary doctor who then took an ultrasound and blood tests. She then referred me to an oncologist/gynecologist. My blood test as well as the ultra sound indicated something was wrong.
In June, I underwent surgery. I was hoping for a couple of laparoscopic cuts and removal of the tumor, however when I woke up six hours later, that was not the case. I had a complete hysterectomy, appendectomy and scraping of the lining of my cavity. My cancer story is very emotional to me and I will try to touch on the more important details.
When I awoke, my family told me of the bad news, which to this day, is still very surreal.
The Doctor told me that I would need chemotherapy and gave me the options of the number of treatments. I left the treatment in my doctor’s hands. I was totally unaware of which treatment to pick. He then said that he was suggesting the most aggressive treatment available. This was to include six cycles of three each. I had a port in my stomach and IV in arm for the infusions. He also told me that within the first treatment of the first cycle, I would lose my hair. I was devastated and numb throughout this whole thing.
Losing my hair, especially since I was in the business atmosphere, made me feel that I could not go out in public. I knew I would feel that people would be looking at me and there is a stigma with that and that is of being sick. My loss of my identity with a bald head was too much. I’m not vane, just didn’t want to lose my dignity.
A friend, who is a nurse, told me about the cooling cap method. My brother then researched and send me the caps to use. I was told there was no guarantee. My brother would cover the costs because insurance did not. The procedure is not easy, but my wish to keep my hair was more important than what I would have to go through. After all, in my mind, how much worse could it be?
During my treatment, I was able to keep most of my hair
The one key point I can offer for the cooling cap method to work is that you must have a support system. A friend or family member is a must in order for this to work. There is the coolers, dry ice temperatures needing to be taken, changing caps and other things that your support system will be doing during your infusion.
My treatments were long. Having someone there taking care of all that needs to be done, makes the time fly and the company is very nice also. I had treatments from July thru November. During those months, I was able to keep most of my hair, although it thinned because my treatments were accumulative. So, by the end of November, I was able to get away with just a headband, until it filled back in.
People have asked me if the whole cooling cap method was worth it. I have said “YES” to all the questions.
How do the cold caps work?
The cold cap is also considered a hypothermia cap and creates a vasoconstriction (narrowing of blood vessels) at the hair follicle level over the entire scalp, starting from the hairline base at the neck. The vasoconstriction and the resulting lower metabolic rate restricts the blood flow and penetration of the cytotoxic (Cytotoxic medicines are poisonous (toxic) to cancer cells. They kill cancer cells or stop them from multiplying) to the hair follicle cells, preserving the hair.
Are there any side effects to wearing the cold caps?
The cold cap is generally well tolerated. Headaches may occur during the first minutes of wearing the cap. But, gradually it will subside and patients report no discomfort in most cases.
What are the benefits of using the slippers and mitts?
Clinical studies have shown that the hypothermia mitts and slippers aid in the reduction of onycholysis (nail loss) and skin toxicity in patients undergoing chemotherapy.
What is the cost of your one stop shop cooling cap system?
While other competitors rent their systems, when purchasing our system, you own everything you buy. There are no returns. For pricing, see our Order Products Link.
Should I buy instead of renting?
First, you are spending money to begin with, so why not buy and own and have something to show for it. Second, renting can become very expensive based on the length of the treatments. Treatments can go into months where you are then paying monthly versus a one- time charge, no deposit, no return.
What do I do with the caps when I’m done?
You have a variety of choices once you have purchased our products. Most of the items can be used for other purposes. The caps can be donated, resold, or given away.
Does medical insurance cover the caps?
As of this date, you would have to check with your insurance coverage to find out if they have added the cooling caps as a covered item in your package. Some insurance companies, upon a cranial cap prescription, may cover the charge. Again, you would have to check with your insurance company.
The caps can be used by men, women and children. The parents and doctor need to decide if the child is age appropriate. Do we have to pay for the training?
Once you purchase our products, there will be instructions included. Who pays shipping?
It is the customer’s responsibility to pay for shipping. We will have a link to calculate shipping costs to your zip code.
"My name is Michelle Bohrer and I am a successful cold cap user. Although I used another form of a cold cap, I completed four rounds of chemotherapy (taxotere and Cytoxan) on January 7, 2014 and am so happy to say that I still have my hair! This has been a life-changing gift from God and I am so grateful''.
"I was diagnosed with Ovarian Cancer in May, 2015. My family had just buried my dear mother. When all of this happened, in such a short time, I was devastated with the news and my stress level was at an all- time high. My doctor told me that he thought I should go through one of the harshest treatments out there to treat ovarian cancer. I went with everything he told me. I had no knowledge of chemotherapy, or cancer for that matter. My doctor told me that I would probably lose my hair right after the first treatment. After that news, I went home and lost control of my emotions and cried even though I was numb from everything that had gone on and was currently going on. My brother called and I cried to him about losing my hair on top of everything else. How could I even go outside with a bald head; that is not me and I don’t know if I will survive all of this I told him. He called back a few hours later telling me that his nurse girlfriend had experience with the cold cap method and was sending me the information along with the caps. I starting using them and was able to save the majority of my hair. I was able to get away with a headband for the thinning areas. This was such a blessing and I thank God every day for being in remission and having my hair. I did have to cut it short because of the number of treatments I was prescribed, which was 18 treatments. The Cooling Cap Method was a lifesaver, an attitude adjuster, and an all-around gift from God! I thank my friends and family for being there because somebody was with me every treatment to help me with the caps. I would definitely recommend this method to try and save your hair. It was difficult, but definitely worth it!"
"Treating the "mind, body, and spirit" of a patient is as important as the diagnosis itself. As a nurse, making a patient feel their best is imperative and vital to the healing process. Once the patient has been counseled on chemotherapy, their first thought is of hair loss. The use of cold cap therapy is the patient's way of potentially stopping the hair loss from happening and helps to maintain a positive self-image. We all know that statistics have many variables: For example, the source or the history of the patient. We can quote our chances as a female of getting breast cancer as 1 out of 8, lung cancer 1 out of 20, or even ovarian cancer 1 out of 70. We can all agree to disagree about those odds, based on ethnicity, health, etc. But the one statistic that we can all agree upon is the fact that none of us want to lose our hair, especially when dealing with a diagnosis. Being proactive and taking responsibility prior to treatments starting, is definitely a positive for the patient. Our jobs as healthcare workers is to educate our patients on the options they have before hair loss happens. It is vital that we are open and honest with the patient as to how the product works, and how it may feel. As healthcare workers, it is our job to be the advocate for the patient, and to discuss with them the various steps that may occur during this process. It is also good to involve not only the patient, but family and friends as well. Education is the key to success! "
Connie BSN, RN, GA
All information is intended for your general knowledge only and is not a substitute for medical advice or treatment/cure of cancer. These products are intended to help prevent hair loss/skin toxicity/nail loss and there is no guarantee. Results may vary. We cannot and do not give you medical advice. You should seek prompt medical care and advice for any medical issues and consult your physician before purchasing any of these products.